When Araceli Cantero Obregón was seven months pregnant, doctors in Nicaragua told her that her son Edgard Sequeira would have hydrocephalus, a condition in which excess cerebrospinal fluid (CSF) builds up within the ventricles of the brain. She was also advised that they identified spina bifida, which occurs when a baby’s spinal cord fails to develop properly in the womb.

Despite the heartbreaking news, Obregón was not going to give up on her first-born son, who she welcomed into the world on September 6, 2007. By the time Edgard turned one, he had undergone surgery for both conditions. The procedures allowed the family a sense of normalcy for a few years, but the young boy continued to face medical setbacks and personal hardships.

Throughout his childhood, Edgard was not developing physically or cognitively. He also was experiencing complications with his bladder and kidneys. Furthermore, Obregon began noticing her son was lacking energy. He was isolated from his friends and had occasional seizures.

In 2016, pediatricians in Nicaragua ran tests and gave Obregon frightening news — her son was diagnosed with chronic kidney disease (CKD) and would need to start dialysis immediately. Edgard was also suffering from high blood pressure. The diagnosis was an all too familiar red flag for Obregón, who had lost her husband to CKD two years prior.

“It was traumatic to hear my son was suffering from the same disease that took my husband,” Obregón said. “My whole world was falling apart.”

After years of attempts with no sustainable treatment, Obregón desperately sought the care of pediatric nephrologists at Holtz Children’s Hospital, leaving Nicaragua for the U.S. in February 2020.

When Edgard arrived at Holtz Children’s, he was malnourished, weighing 50 pounds at 12 years old. After a thorough examination, his team of nephrologists determined he needed intervention in urology, nutrition, and blood pressure care before he could be listed on the national transplant waiting list. He would also need to continue receiving dialysis four times a week while being monitored by the pediatric transplant team at the Miami Transplant Institute (MTI).

Due to the COVID-19 pandemic, the family was also faced with the decision of having to stay in Miami long-term. For Edgard to have a fighting chance, Obregón knew the best decision was to stay in South Florida and make sure her son completed his treatments.

Thanks to the help and financial support of family, friends, and Miami’s Corpus Christi Catholic Church, Edgar and Obregon were able to stay in the U.S. and continue with Edgar’s care.

Over time, Edgard, now 14, had breakthroughs in his health, and last October, he was listed on the national transplant list. Five days after her son was listed, Obregón received the call from MTI that they were ready to perform the life-saving procedure.

The successful kidney transplant was led by Mahmoud Morsi, MD, and a multidisciplinary team at Holtz Children’s.

“I am eternally grateful to everyone, the social workers, the nurses, the nephrologists, the Holtz team, the MTI team, and so many others who have become a part of our family,” Obregón said. “There is no way to repay them for giving my son a chance to have a better quality of life.”

For the care team, miracle stories like these also remind them of their life’s calling as medical professionals.

“It’s a gift for them, and it’s a gift for us,” said UHealth pediatric nephrologist Jayanthi Chandar, MD. “It gives us a sense of fulfillment and happiness to see our patients thrive and witness extraordinary changes in their mental, emotional, and physical state.”

When Patricia Fusco and Katrina Wegmann were in high school, Patricia shared that she would not be able to carry and birth her own children. Unbeknownst to Patricia, Katrina decided then that if she was able to when the time came, she would be a surrogate for her friend.

Little did they know that more than 20 years later, not only would they still be close friends, but their husbands would also be best friends. And when Patricia and her husband, Andrew, had trouble finding a surrogate, Katrina stepped up.

Katrina, who already had two children of her own, expected it would be “another easy pregnancy and it would be able to make them a family.”

The pregnancy turned out to be anything but easy. Twelve weeks into her pregnancy, Katrina’s blood pressure was high — something she’d never experienced before, causing the pregnancy to be considered “high risk.”

Turning to Jackson for High-Risk Care
As the pregnancy progressed, Patricia, a senior specialist for community outreach and events at Jackson Health System, asked Katrina to consider meeting with the Maternal Fetal Medicine team at Jackson Health System. Every year at work, Patricia plans multiple events, including the NICU reunion, where babies who were saved and cared for at the Holtz Children’s Hospital Neonatal Intensive Care Unit (NICU) are reunited with their medical teams.

“I know that Jackson treats over 50 percent of South Florida’s high-risk pregnancies and that the Holtz Children’s Hospital NICU is one of the largest and best in the nation,” she said. “Working at Jackson, I hear the miracle stories all the time. But you never think you’re going to be one of those miracle stories.”

Katrina and Patricia immediately felt comfortable and confident in the Jackson team. They were followed by Jackson Medical Group physicians, Dana L. Homer III, MD, FACOG, an OB/GYN, and Felipe Tudela, MD, FACOG, an OB/GYN and maternal fetal medicine specialist.

Patricia called Tudela “a gift to his profession.”

“He’s probably the best doctor I have ever had the pleasure of meeting,” she said. “Everyone on the team invests themselves wholeheartedly in each patient’s case.”

When Katrina was 23 weeks pregnant, she suffered from terrible headaches, and her blood pressure was extremely high. She was admitted to the hospital and told she would need to remain there on bed rest to try to prevent an early delivery. That meant a possible two-to-three-month hospital stay – a stressful complication since she had two small children at home. Later they would confirm she had preeclampsia, a potentially dangerous pregnancy complication associated with high blood pressure.

A Difficult Choice
Two weeks later, a routine ultrasound showed that the baby was not growing and there was concern with the placenta, which was no longer providing critical nutrition to the baby. Dr. Tudela told them to consider delivering the baby early because he did not know if the baby would survive otherwise. Patricia, Katrina, and their husbands came together to make the difficult decision.

“That was a terrifying day for us, probably one of the most emotional days,” Patricia said. “Ultimately, we trusted the Jackson NICU enough that we preferred to deliver him then, rather than seeing what could happen if we tried to keep him in utero.”

On May 27, 2021, at 25 weeks and five days gestation, Joseph Patrick, nicknamed JP, was born weighing just 1 pound 4 ounces. Quickly, doctors told the Fuscos that they made the right choice as there was no more amniotic fluid in the sac, and the baby would not likely have survived if they had waited.

As soon as the Fuscos saw their baby in the NICU, they felt more at ease.

“When we saw him, I thought, ‘they’ve got this,” Patricia said. “Once he was stable in the NICU, things began to feel safe. And every step of the way from that day forward, the doctors, nurses, therapists, everyone at every level always kept us abreast of what was going on.”

The NICU Village
JP thankfully had no brain bleeds and a fairly smooth ride in the NICU, with some breathing complications and an unknown infection during his stay. He remained in the NICU for 123 days.

“They say it takes a village [to care for a child], and I can wholeheartedly say there is no better village than the NICU village at Holtz Children’s,” Patricia said.

During JP’s stay, Patricia and Andrew said they were a part of every conversation regarding his care and the nurses became their friends, confidants, and teachers.

In addition to the expert and compassionate care that both Katrina and JP received, Patricia said she is grateful that everyone at Jackson treated their uncommon situation as if it were an everyday occurrence.

“We had a unique situation because we were high-risk. It was also unique because it was a surrogacy, and we were two friends going through this together,” Patricia said. “We know that our situation is not common. It definitely is not something they see every day. But every single physician, every single healthcare worker, never batted an eye at us. Everyone treated the experience with understanding and compassion. I don’t know if that would have been the case at another hospital.”

In September, after a nearly four-month NICU stay, JP was able to go home.

“It was a relief to finally be able to walk out of those doors with our son,” Patricia said. “It felt like an accomplishment.”

A Special Bond
JP continues to grow and thrive but is closely monitored by doctors and specialists to make sure he’s developing and that no more complications arise. Patricia and Andrew are now enjoying what they call a more “normal” stage of parenting.

“We’ve already seen him grow from a fragile 1-pound infant to a robust, beautiful baby boy,” Andrew said. “Now I’m looking forward to watching him hit those milestones, not only growth and developmental milestones but the little kid moments that define a childhood.”

And Katrina is happy that she will be there to witness it all. While they still need to be careful about visits due to the pandemic, the families are closer than ever.

“I talk to my kids about JP all the time, and they can’t wait to spend time with him. I look forward to them growing up together,” she said.

The experience “intertwined” the families forever, Patricia said.

“We are eternally grateful to her,” she said. “There are no words or ways we could ever adequately repay or thank her for what she has given us.”

In December 2020, Daniel Furlong, a former urology resident at Jackson Memorial Hospital, and his wife, Sarah, were packing for their babymoon trip – four months before the expected arrival of their first child – when suddenly, Sarah began to experience uterine cramps.

The couple immediately rushed to The Women’s Hospital at Jackson Memorial, where doctors determined Sarah was in preterm labor. She remained hospitalized for observation, but the baby just couldn’t wait.

On December 30, 2020, with the help of Rachel Franklyn, MD, Jackson Medical Group associate medical director of obstetrics and gynecology, Sarah gave birth to a baby boy at nearly 25 weeks. Ryder, who weighed just 1 pound, 10 ounces, was immediately rushed to the neonatal intensive care unit (NICU) at Holtz Children’s Hospital. He remained intubated in the NICU for two months and had to overcome several medical setbacks, including pneumonia and brain bleeds, which caused him to have several seizures.

Ryder was also diagnosed with a condition called patent ductus arteriosus (PDA), an opening between the two major blood vessels leading from the heart that normally closes shortly after birth. He underwent a PDA ligation procedure, performed by Eduardo Alfonso Perez, MD, a University of Miami Health System pediatric surgeon, to correct the birth defect.

“He had to overcome so many medical challenges in the NICU that his medical team began calling him ‘Ryder the fighter’,” his father, Dr. Furlong, recalled.

When Dr. Furlong wasn’t tending to his patients, he was at his son’s bedside. Due to COVID-19 visitation restrictions, he and his wife took turns visiting Ryder.

“As a physician, I struggled with knowing too much and trying to relay that information to my wife without scaring her while being honest with her about Ryder’s progress,” Dr. Furlong said.

Last May, after spending 125 days in the NICU, Ryder was finally able to go home. The Furlong’s family and friends had anxiously awaited for this moment to come.

“Having Ryder as a patient was a journey for my staff and me,” said Dianne Bennett, ARNP, director of patient care services at Holtz Children’s. “Seeing him finally reunited with his parents after all he had gone through was such a heartwarming moment.”

Dr. Furlong and his wife are happy to be settling in with their son.

“Hearing Ryder cry at home was such a relieving moment,” Dr. Furlong said. “My wife and I had waited months to finally be with our son. We were so overjoyed to have him with us.”

Ryder will continue to visit various specialists to make sure he’s progressing and meeting important developmental milestones.

“As a member of the Jackson family, it was encouraging to know that my son was truly in the best care possible,” Dr. Furlong said. “My wife and I are so appreciative and thankful to everyone who took care of Ryder, including all of the doctors, nurses, therapists, and ancillary staff who treated and loved him as their own child.”