Faith, Family, and Revolutionary Teamwork Save Noah Langlois’ Life at Holtz Children’s Hospital

Faith, Family, and Revolutionary Teamwork Save Noah Langlois’ Life at Holtz Children’s Hospital

By: Miranda Torres

When Michelle Ramkumar Langlois welcomed her first child, Bruce Noah Langlois, on November 29, 2020, she never could have predicted what the next few years of their lives would look like. Noah, born prematurely at 25 weeks and hardly weighing more than a pound, spent his first 207 days of life in a neonatal intensive care unit in Ft. Myers.

Almost seven months later, Noah was finally discharged, but the celebrations were short-lived. Four days later, Noah’s father, Bruce Langlois, unexpectedly passed away.

“His dad was an amazing guy and I think Noah gets a lot of his spirit from him,” Langlois said. “His dad was very outgoing and extroverted and Noah is that in spades. I think he gets his sweetness and his kindness from his dad for sure.”

Despite the heartbreak Noah’s family was experiencing, Langlois was determined to give her son the best life possible.

On his first birthday, she found a strange lump on his stomach. One week later, it was determined that the lump was a tumor that occupied 90 percent of his liver – also known as a pretext 3 hepatoblastoma since it was in three zones of his liver.

“When we got the diagnosis of hepatoblastoma, I was just so concerned for his future,” Langlois said. “I was thinking, ‘What is my little guy going to go through?’”

Noah’s oncologists told Langlois that his treatment options included chemotherapy with the hopes of shrinking the tumor, and eventually a liver transplant or resection. After four rounds of chemotherapy in Ft. Myers, Noah’s tumor did not shrink.

His care team contacted Jennifer Garcia, MD, medical director of pediatric transplant services, adult and pediatric intestinal rehabilitation, and intestinal transplant at the Miami Transplant Institute (MTI), an affiliation between Jackson Health System and UHealth – University of Miami Health System.

Dr. Garcia meet with Noah and his doctors via telehealth one month after his diagnosis. They decided Noah should be transferred to Holtz Children’s Hospital at University of Miami/Jackson Memorial Medical Center on March 24, 2022.

The night before his scheduled transfer, Noah went into cardio-pulmonary arrest. While he was quickly resuscitated and intubated, the Ft. Myers team didn’t think Noah would survive the transfer. Thankfully, Juan Pablo Solano, MD, a pediatric critical care specialist at Holtz Children’s, was the attending physician in the pediatric intensive care unit at the time and approved his transfer.

On March 29, 2022, Noah was airlifted to Holtz Children’s. Upon arrival, he was battling respiratory failure due to a sepsis infection and effects of his recent cardio-pulmonary arrest. His tumor was pressing against his diaphragm, making it difficult for him to breathe and eat. He mainly survived on parenteral nutrition (TPN) for a year.

He spent six months in the pediatric intensive care unit undergoing more rounds of chemotherapy. Noah’s mom and grandmother moved into the Ronald McDonald House, which is conveniently located on the Jackson Memorial campus, allowing them to spend their days alongside him.

“Noah and God gave me the strength to keep going every day,” Langlois said. “It’s hard to stay in a state of sadness and despair when this little guy is saying, ‘I’m not giving up, I’m still here, and I’m still fighting.’”

Noah’s care team reached out to Prasoon Mohan, MD, a UHealth interventional radiologist, who researched whether forms of a Y-90 embolization could be safely performed on a patient of Noah’s age and size.

A Y-90 embolization is a minimally invasive procedure that combines embolization and radiation therapy to treat liver cancer. Dr. Moha’s research found that this procedure had never been performed on such a young patient.

Noah’s family and the rest of the medical team decided to move forward with the experimental treatment. The results showed the liver was indeed responding. Dr. Mohan then treated Noah with two rounds of bland embolization, and the tumor significantly reduced in size, making him eligible for transplant.

“I want to stress that this kind of success can only happen at a place like Jackson, and that is because of the wide-range of expertise that we have here,” Dr. Mohan said. “The expertise of the different specialists and the trust we have in each other allows us to work as a team. We really do make miracles happen here.”

“You pray for months and months for these things to fall in place, but it’s a hard thing to pray for because you know what it means for someone else,” Langlois said. “I prayed that no matter how it happened that God would provide a way for Noah to have a long, healthy, beautiful life.”

On December 29, 2022, Langlois received the call that would forever change their lives – a donor had been found for Noah.
“He has come out of so many very difficult situations before his transplant, which showed us he would be able to overcome a transplant surgery,” said Akin Tekin, MD, liver, intestinal, and multivisceral surgeon at MTI.

Vighnesh Venkatasmy, MD, transplant surgeon at MTI, travelled out of state to procure the donor liver. Gennaro Selvaggi, MD, transplant surgeon at MTI, cut down the liver to fit Noah’s small frame. .Dr. Tekin then performed the transplantation of the new liver into the young boy.

While Noah was undergoing his transplant, his family rallied together in prayer. “Noah is a fighter; he was born fighting and he hasn’t stopped yet. He is an inspiration not only to us, but to so many people that have come to know him,” said Molly and Albert Ramkumar, Noah’s maternal grandparents.

Post-transplant, Noah underwent his two final rounds of chemotherapy. In April, he officially rang the bell on the oncology floor of Holtz Children’s, signifying the end of his cancer treatment, and marking the eminent end of his chapter as an inpatient.

“The past two years have been a rollercoaster, but I would not have missed this time with Noah and Michelle for anything,” said Stacy Langlois, Noah’s paternal grandmother. “We have been a part of every procedure, surgery, chemo treatment, infection, sleepless night, devastating news; but also a part of his smiles, love, his effect on everyone he meets, and his love for life.”

A year and three months later, Noah and his family are preparing for discharge. Before he heads home, he is undergoing physical, speech, and occupational therapies.

“This child has such a desire to live and play and be social from such a young age that he motivates everyone around him to do more and help him improve,” said Heidy Carbot, a pediatric physical therapist at Holtz Children’s.

The family plans to split his follow-up care between Holtz Children’s and a local hospital closer to their home in Ft. Myers.

“When we got here a year ago, we didn’t know if we would be leaving Holtz Children’s with Noah, ever. Chances were so high we that he was not going to survive this,” Langlois said. “But here we are at the end of this journey, and it is because of the team here at Holtz Children’s who never gave up on him and the care he has received. ‘Thank you’ is not adequate, but it is all I’ve got.”

Defying the Odds: Danielle’s Miraculous Recovery at Ryder Trauma Center

Defying the Odds: Danielle’s Miraculous Recovery at Ryder Trauma Center

In September 2013, Danielle Press suffered life-threatening injuries in a boating accident off the coast of Key Biscayne – the very place where her father is police chief.

Danielle, 26 at the time, was rushed to Ryder Trauma Center with several deep, lacerating injuries to her upper leg. Trauma surgeons immediately operated on Danielle, who had lost a lot of blood and nearly died.

A group of medical professionals and a patient at a press conference
A group of medical professionals and a patient at a press conference

The medical team at Ryder Trauma, led by UHealth – University of Miami Health System trauma surgeon Gabriel Ruiz, MD, and UHealth orthopaedic trauma surgeon Fernando Vilella, MD, saved Danielle’s life.

The sciatic nerve in Danielle’s left leg, which controls the majority of movement and sensation in the leg, had been completely cut and separated. Danielle, an active college graduate who had traveled extensively in Asia teaching English, was told she may lose her leg and never gain feeling or movement again in her leg because repairing the sciatic nerve – the largest nerve in the human body – is one of the most challenging nerve surgeries.

But Allan Levi, MD, a UHealth neurosurgeon at Jackson Memorial Hospital, obtained approval from the FDA to perform a unique procedure on Danielle, combining standard nerve grafting with her own Schwann cells, in hopes of regenerating the nerve and restoring her function. Dr. Levi also led the world’s first Phase 1 of FDA approved clinical trial, through The Miami Project to Cure Paralysis, using a patient’s own Schwann cells to treat paralysis, so he felt this would give Danielle the best chance at some level of recovery.

The world’s first procedure, performed in October 2013 at Jackson Memorial Hospital, was a success – and the progress Danielle has made since then has been remarkable.

“To be a part of the club ‘Accident Victim’ is never something I would have wanted, but to be a part of the ‘Ryder Trauma Survivors Club’ is something I couldn’t be more proud and grateful for.”

Danielle Press

In the nearly four years since the near fatal accident, Danielle moved to Taiwan, where she climbed one of the highest mountains and volunteered to carry water jugs to temples. She visited one of the world’s largest caves in Borneo, swam in turquoise lagoons in the Philippines, camped all over Japan, became certified as an advanced diver, and dove with a school of hammerhead sharks. She has become a writer, and her writings about the accident, her recovery, her passion for fitness, and travel have been published on several websites.

Danielle recently married her longtime boyfriend, Jeff. The couple is living in the Jamaican countryside, working and learning on a vegetable farm. Their next adventure will bring them back to North America, where they plan on following their dreams of opening a “Farm to Table” bed and breakfast lodge.

All this, she says, would not have been possible without the second chance she was given at Ryder Trauma.

“My gratitude for the staff, the doctors, the nurses, and the specialists knows no bounds,” Danielle said. “They played such a paramount role in my recovery and I will never forget them.”

This Doctor’s Day, we share a story of compassion and friendship that reminds us of how fragile life can be, and how grateful we all are to have doctors that care about helping others.

This Doctor’s Day, we share a story of compassion and friendship that reminds us of how fragile life can be, and how grateful we all are to have doctors that care about helping others.

By: Krysten Brenlla

Romualdo Segurola, MD, 58, is no stranger to heart health. A practicing cardiovascular surgeon for 20 years, Dr. Segurola has seen patients from around the world with extensive heart disease, and has dedicated his life to helping them.

That’s why when Dr. Segurola, Jackson Health System’s chief of cardiac surgery and medical director of Jackson Heart Institute, felt intense chest pain on the night of January 22, 2022, he knew what he was feeling.

“For some time, I was feeling discomfort – my brother had just passed away, and my health was suffering as I grieved his passing,” Dr. Segurola said. “Months before, I was checking my heart health frequently, but that night, I started feeling chest discomfort, and in a very short period of time, that chest discomfort went south. It was the worst pain I’ve ever felt in my life.”

From his home, Dr. Segurola immediately called Alexandre Ferreira, MD, chief of cardiology for Jackson Heart Institute, to let him know his symptoms.

As soon as he received the call, Dr. Ferreira rushed to Jackson Memorial Hospital to care for his colleague and friend.

“It is a strange emotion when you see one of your close colleagues experiencing severe pain,” Dr. Ferreira said. “Dr. Segurola’s case was different than any other patient I’ve treated because when he called me, he already had a diagnosis for himself. He said, ‘my friend, I’m having a heart attack.’”

When he arrived at Jackson Memorial, Dr. Segurola was rushed to the catheterization laboratory for life-saving treatment. Upon evaluation, Dr. Ferreira and his team found that Dr. Segurola suffered a “widowmaker” heart attack, a type of heart attack that involves an obstruction of the left anterior descending artery, one of the most important arteries that provides blood to the heart.

“When all this was happening, the fact that these are my friends and colleagues didn’t matter to me,” Dr. Segurola said. “At that moment, I was just seeing my doctors, and I put all my trust in them to save my life.”

Men walking in the middle of the hospital
Men walking in the middle of the hospital

Dr. Ferreira and his team performed a coronary angiography to identify where the obstruction occurred. Through a blood vessel in the groin area, they advanced a catheter to the level of the heart, and placed a balloon at the site of the lesion.

“Through the catheter, we were able to place a balloon and inflate it, which stretched the vessel open and allowed us to insert a stent, or a metal tube, to prevent the vessel from collapsing again,” Dr. Ferreira explained. “The procedure restores blood flow to the heart muscle, and most patients experience immediate resolution of chest pain.”

After less than an hour, Dr. Segurola’s chest pain was almost completely gone. He spent two days in the intensive care unit before being discharged.

One year later, Dr. Segurola feels healthier and stronger than ever. He exercises regularly, and follows a strict regimen with medication and a healthy diet.

“The fact that we are able to see him every day, ask him how he’s doing, have him continue to provide patient care, and know that he’s doing well – it’s a great joy,” Dr. Ferreira said.

Dr. Segurola continues to do what he loves by helping patients maintain their heart health, and saving their lives from deadly diseases that may lead to a heart attack – an experience he knows all too well.

“Going through something like this, you really understand your patients better, and that’s priceless,” Dr. Segurola said. “I knew that whatever I would have to face, we would have been able to take care of it here, at Jackson, because this is the only true comprehensive program in South Florida.”

“I can’t thank my friends and colleagues at Jackson enough for saving my life.”

Local Firefighter Receives Kidney Donation from Sister at Miami Transplant Institute

Local Firefighter Receives Kidney Donation from Sister at Miami Transplant Institute

Jeffrey Hackman, a firefighter with the Miami-Dade Fire Rescue Aviation Division, was used to jumping in front of danger to save lives.

However, in 2015, he found his life in danger when his doctor discovered traces of blood in his urine during a routine physical.

For the next six years, Hackman, 47, saw a nephrologist annually, who tested him for kidney damage.

“I’ve had some blood in my urine on and off since my teens, but never thought anything of it,” Hackman said. “I felt fine and had no symptoms of anything else being wrong, but we still monitored it every year like clockwork.”

It wasn’t until September 2021, during an annual checkup with the fire department, that his doctor found something concerning.

Hackman’s kidney function dropped from 30 percent to 17 percent, and he became a critical case.

“The hardest thing for me was when I was pulled off of my fire truck to regular duty in the fire department,” Hackman added.

“I wanted to pretend nothing was wrong, but no longer having my truck after 27 years was when I finally realized things were serious.”

By October 2021, Hackman was experiencing leg swelling from his knees down to his feet and ankles, a symptom of chronic kidney disease.

It became clear he needed a kidney transplant.

After several inquiries across the U.S., Hackman found the perfect place to prepare for the procedure, and it was right in his backyard– the Miami Transplant Institute (MTI), an affili­ation between Jackson Health System and UHealth – University of Miami Health System.

All he needed was a donor.

“I was still in denial, thinking I’d get better on my own,” Hackman said. “I had tough-guy syndrome, and thought everything would be fine, when in reality, it wasn’t.”

Finally accepting his condition, Hackman took to social media to find a solution. He posted his story, and soon, support came flooding in.

Within a few days, his ideal match came from his own family – his big sister, Dawn Martin, who lives in Atlanta.

“I’ve always looked up to my brother, and now he needed my help,” Martin said. “I called him and said, ‘Are you busy December 8?’ and he said no, and I said, ‘Good, because you’re getting my kidney!’”

Martin and Hackman’s loved ones and friends were part of their journey for the next three weeks, providing them with a place to stay, daily meals, and the resources they needed to face this life-changing event.

On the day of the transplant surgery, the siblings were prepped and transferred to two separate operating rooms – one for the donor and one for the recipient.

Rodrigo Vianna, MD, PhD, director of Transplant Services, and chief of liver, intestinal, and multivisceral transplant at MTI, removed Martin’s kidney using robotic surgery.

“The biggest difference in using robotic surgery is the pain level during the patients’ recovery,” Dr. Vianna explained. “Most of the living donors return home within 24 hours –that’s a huge benefit.”

In the other operating room, the MTI surgical team was confident that a living kidney donor was the best way to save Hackman.

After a successful recovery, Martin was discharged the day after surgery, well enough to continue recovering at home. Just weeks after her first follow-up appointment, she and her husband were ready to drive back to Atlanta to reunite with their children.

Hackman was discharged after three days in the hospital. His wife, Aly, and his parents took over his care and recovery.

Martin now sees her health in a new perspective – she’s adding more exercise to her daily routine and is eating healthier.

When she looks at her new tattoo of the Miami-Dade County Fire Rescue emblem on her forearm, she is reminded of her brother, and how sometimes, even heroes need help.

“It’s a tribute to my brother, but it also gives me a chance to talk about the donor program at MTI and how important it is,” Martin said.

After a few weeks, Hackman settled back into his routine, and has returned to saving other people’s lives with a healthy kidney in place.

“I believe my diligence in listening and trusting the surgeons and caretakers at Jackson sped up my recovery,” he said. “I feel fortunate to have such an incredible team of healthcare professionals close to home.”

South Florida Father Saved at the Miami Burn Center after Suffering Life-Threatening Burns

South Florida Father Saved at the Miami Burn Center after Suffering Life-Threatening Burns

In September 2019, John Pendleton suffered life-threatening injuries at work after more than 4,000 volts of electricity entered through the top of his head and exited out of the back of his neck.

The father of two was rushed to a nearby trauma center in West Palm Beach, where he underwent an emergency tracheotomy after aspirating in his lungs.  Once he was stabilized, he was airlifted to the Miami Burn Center, located inside Ryder Trauma Center at Jackson Memorial Hospital.

His medical team at the Miami Burn Center determined he had suffered a traumatic brain injury, a skull fracture, brain bleed, and third and fourth degree burns to 30 percent of his upper extremities. His organs were also shutting down.  He was placed under a medically-induced coma, and remained in the burn intensive care unit for seven days.

“I was sleeping at home with our one-year-old when I received the devastating call,” said Tiffany Pendleton. “They told me my husband was taken to Ryder Trauma, and that they didn’t know the extent of his injuries other than what they could see on his scans, and that it could take some time before he could wake up.”

Pendleton, then 31, was in extreme pain, and had a long journey ahead of him.

“At that point, John’s diagnosis was very grim,” said Dr. Louis Pizano, medical director of the Miami Burn Center. “We didn’t know if he would be able to walk, talk, and live independently if he survived his severe injuries.”

Pendleton’s burns were so severe. He lost his right ear, and 40 percent of the left one. Doctors also had to extract part of the latissimus dorsi muscle – the large, flat muscle covering the width of the middle and lower back – to reconstruct his head flap, which was severely burnt in the accident.

A critical part of Pendleton’s recovery at the Miami Burn Center was intense inpatient physical, occupational, and speech therapy. Miraculously, he beat the odds, and walked out of the Miami Burn Center 60 days after his accident.

“It was a very rough time in my life, but we have remained optimistic through this entire journey,” he said. “After my injuries, my outlook on life has changed.  I am so grateful, as tomorrow is not promised.”

Since his injury, Pendleton has had 10 surgeries in total, and is expected to undergo more reconstructive surgeries in the near future.

The Pendleton family is grateful to the medical team at the Miami Burn Center for all the care he received.

“Having relationships with the doctors who saved my life, participating in burn events, and bringing everyone cookies when we visit means the world to me,” said Pendleton. “Even after all the pain I’ve been through, I’m still standing here and I owe it all to them.”

Ukrainian Refugee Undergoes Procedure at Jackson Memorial Hospital to Remove Neck Mass

Ukrainian Refugee Undergoes Procedure at Jackson Memorial Hospital to Remove Neck Mass

After traveling for 14 days to flee the warzone in her native Ukraine, 46-year-old Olena Orlova arrived in South Florida mid-April in the hopes of receiving treatment for a nine-centimeter cyst on her neck.

Two years ago, Ukrainian physicians discovered the mass. At the time, doctors explained the gravity of Orlova’s diagnosis, and she was advised to seek the help of a specialist. However, while searching for the care she needed, the mass continued to grow, making it difficult for Orlova to swallow and move her neck easily.

As she began to worry about the severity of her condition, she received news that a doctor was available to take on her case. Orlova was scheduled to undergo surgery on February 24. Unfortunately, all that changed the day before the procedure was supposed to take place when Russian troops invaded her hometown of Kharkiv.

“I was told in Ukraine that I only had six months to live,” Orlova recalled. “My home was destroyed; there was no access to food or health care.”

As the country faced uncertainty, Orlova became more concerned about her health. She reached out to her son Oleh Orlov to determine how she could evacuate. Orlov, who lives in Miami, began his mission to help his mother and possibly save her life.

Through the assistance of loved ones, friends, and good Samaritans, the family was able to get the financial help they needed for Orlova to begin her journey. She would travel alone through Poland, the Netherlands, Mexico, and California before her son was able to meet her in South Florida.

Thinking his mother’s life was in danger, Orlov did not want to waste time. On April 21, he took Orlova to the Emergency Department at Jackson Memorial Hospital, where she was evaluated and treated by a multidisciplinary team, including Elizabeth Nicolli, MD, a UHealth – University of Miami Health System otolaryngologist who specializes in head and neck surgery.

Orlova was diagnosed with a branchial cleft cyst – a congenital condition that occurs when tissues in the neck or collarbone fail to develop normally.

“While the mass was benign, it could continue growing and ultimately compress vital structures in her neck if left untreated,” Dr. Nicolli said. “There are important nerves and blood vessels in the neck, and our ability to speak, swallow, and breathe is centered there. We wanted to make sure to preserve and protect these areas.”

The news came as a relief for Orlova’s family, who thought her condition was life threatening.

“After what she’s been through, I felt everything was going to go well for my mom,” Orlov said. “I knew we were at one of the best hospitals, so we did not hesitate to move forward with her care.”

Upon learning of the patient’s long journey to seek help, Dr. Nicolli wanted to contribute in her own way. She advised Orlova that she would waive her physician fees to perform her surgery. Dr. Nicolli also worked with Jackson Health Foundation, Jackson Health System’s fundraising arm, to find additional support.

“This is an example of the community coming together to help someone in need,” said Flavia Llizo, the Foundation’s co-president and chief development officer. “Through the generosity of two private donors, we were fortunate to obtain the funds to pay for the additional hospital costs.”

On May 23, Orlova successfully underwent surgery at Jackson Memorial to remove her cyst.

“I am very grateful for all the support I’ve received, and to everyone who has helped me along the way,” Orlova said.

After an overnight stay at the hospital, she is now recovering well at home. She hopes to start over in South Florida and spend quality time with her son.

Man Recovers from Traumatic Brain Injury after being Hit by a Car

Man Recovers from Traumatic Brain Injury after being Hit by a Car

In May 2020, Lucas Martinez, then 21, was driving his motorcycle on Interstate 95 when he lost control of his bike and was flung onto the busy highway. Confused and unaware of what had happened, he stood up and began walking towards his motorcycle on the opposite side of the interstate. Moments after attempting to cross through traffic, Martinez was hit by a car.

He was rushed to Ryder Trauma Center at Jackson Memorial with multiple fractures to his lower extremities and a traumatic brain injury (TBI).

“I hadn’t heard from Lucas in more than 24 hours, so when two police officers knocked on my door, I braced myself for the worst,” said Christine Martinez, Lucas’ mother. “This happened near the beginning of the COVID-19 pandemic, and I couldn’t see him while he was in the hospital, which made the situation even harder.”

Martinez remained heavily sedated at Ryder Trauma for several weeks while recovering from his injuries.

He was discharged on June 10, 2020, but would require intense rehabilitation to relearn how to walk, eat, and talk.

Three months after leaving Ryder Trauma, Martinez was admitted into Christine E. Lynn Rehabilitation Center for The Miami Project to Cure Paralysis at UHealth/Jackson Memorial.

“For TBI patients, inpatient rehab is the first step of the recovery process that can continue for months or even years,” said Lauren Shapiro, MD, a UHealth – University of Miami Health System physician who specializes in traumatic brain injuries and physical medicine and rehabilitation at Lynn Rehabilitation Center.

When he arrived at Lynn Rehabilitation Center, he was only able to move his right arm, could not speak, and was receiving nutrients through a feeding tube. Over the next several weeks, Martinez would undergo intense physical, occupational, and speech therapy.

He was discharged on October 30, 2020, and was able to speak, eat solid foods, and move his left arm on his own.

“I can’t remember anything between May and October 2020,” Martinez said. “My first vivid memory was being discharged from Lynn Rehabilitation Center.”

However, he still had a long way to go in his recovery. Martinez relied on his wheelchair, family, and caretaker to help him with day-to-day tasks. He would continue receiving outpatient therapy at Lynn Rehabilitation Center.

“Those first few months of outpatient rehab were difficult,” Martinez recalled. “It was a mental and physical challenge.”

On March 24, 2021, he completed one of his first major milestones. With the help of his physical therapist, Jill Collum, he took his first steps since his accident.

In the months that followed, Martinez graduated from speech therapy, started walking with the help of a walker, and began to participate in a peer support group for TBI patients.

“When I got to Lynn Rehabilitation Center, I was shy and didn’t want to speak with other patients or my therapists,” he said. “The more I progressed in therapy, the more I broke out of my shell. Now I want to help encourage other TBI patients through their recovery.”

This newfound attitude helped Martinez overcome the difficult hurdles brought on by his injury.

“I’ve been working with Lucas for more than a year and a half. In the beginning, he wasn’t able to sit up or roll over onto his side,” Collum said. “He has been through so much in two years. He was completely dependent on his care team and family, and now he’s walking on his own.”

Today, Martinez continues to receive outpatient physical and occupational therapies. While he still has a long road to recovery ahead of him, his positive attitude and strong support from his family, friends, therapists, and doctors motivate him to keep progressing.

“My accident helped put things in perspective for me,” Martinez said. “I’ve gained a new appreciation for life, and it’s all thanks to the incredible team at Lynn Rehabilitation Center. They pushed me every day to help get me where I am today.”

South Florida Woman Receives a Heart Transplant on Daughter’s Wedding Day

South Florida Woman Receives a Heart Transplant on Daughter’s Wedding Day

Reaching some of life’s major milestones hasn’t always seemed possible for 60-year-old Liliana Hernandez, who has been living on borrowed time for almost 20 years. As a great grandmother, grandmother, mother, and wife, she hoped for the day that her prayers would be answered.

Her husband, Alvaro Lugo, never wanted her to give up. He met Hernandez in 1976 when they were both teenagers in Cali, Colombia. Since then, they have been inseparable, moving to Miami in 1989 to start their family.

Hernandez lived a healthy life up until 2006 when she began to experience shortness of breath and fatigue. Much to the family’s dismay, she suffered a minor heart attack and was rushed to a nearby emergency room. Doctors determined that Hernandez’s heart was failing. They decided to place an implantable cardioverter-defibrillator in her body to help correct life-threatening irregular heartbeats.

Eventually, Hernandez’s defibrillator needed to be replaced. Physicians also saw that her heart’s mitral valve was not working. They tried to replace it, but the surgery was unsuccessful, leading the family to look for alternatives.

They soon sought care at the Miami Transplant Institute (MTI), an affiliation between Jackson Health System and UHealth – University of Miami Health System. In March of 2019, Hernandez was seen by UHealth cardiologist Joseph Bauerlein, MD, who diagnosed her with dilated cardiomyopathy, associated with significant valvular heart disease, which causes blockage in the coronary arteries.

“We saw that her heart function was 5 to 10 percent. We began providing Liliana with intravenous stimulant medicine to help improve her heart function while waiting for her to get stronger,” Dr. Bauerlein said. “But her only chance of long-term survival was to receive a heart transplant, so we also placed her on the national waiting list.”

Hernandez was placed on the transplant list in January of 2020.

Ten months later, she received a call that a donor was available, but unfortunately, Hernandez spiked a fever that led to a setback. During this time, the family remained calm, putting all their trust and faith in the transplant team.

Over the next year, Hernandez’s symptoms gradually got worse, and she was having a harder time breathing. In August of 2021, she returned to Jackson Memorial Hospital’s surgical intensive care unit. The team performed a catheterization procedure to monitor her heart and implanted an intra-aortic balloon pump to support her body’s blood flow.

Due to the severity of her declining health, Hernandez’s was moved up on the transplant list.

“We were scared. She was suffering, and we didn’t know what was going to happen,” Lugo said. “But our prayers were answered in September when we received the news that a heart donor was available.”

As fate would have it, Lugo was destined to give away two hearts. On September 18, 2021, the couple’s youngest daughter was getting married on the same day Hernandez was scheduled to undergo her heart transplant surgery. She wanted their daughter to continue with her wedding plans, and not to worry about her.

“I didn’t expect the transplant to happen so fast. It was overwhelming but in a good way,” Hernandez recalled. “I felt nervous but at the same time full of emotions knowing I had my family’s support.”

The surgery was performed by a multidisciplinary team led by UHealth transplant surgeon Matthias Loebe, MD, PhD, FCCP, FACC, MTI’s chief of heart and lung transplant and mechanical support. Dr. Loebe personally called Lugo to let him know that Hernandez’s surgery was a success.

“Transplant recipients and their families are under a lot of stress dealing with heartbreaking situations,” Dr. Loebe said. “It is important to me to have a close relationship with the families to guide them through this difficult process.”

The good news was received during the wedding, providing a sense of relief for Hernandez’s second chance at life.

“I have so much gratitude for my doctors and my medical team, I always felt protected,” Hernandez said. “I am not attached to machines anymore; I feel free!”

Hospital CEO Turned Patient Overcomes Stroke Diagnosis

Hospital CEO Turned Patient Overcomes Stroke Diagnosis

During a family vacation in July 2021, Hamilton Clark, 46, woke up in the middle of the night with a severe headache. After attempting to stand, he lost his balance and collapsed on the floor. Clark didn’t think it was serious, so once he got someone to help him up, he went back to bed.

When he returned home two days later, Clark, Jackson Memorial Hospital’s senior vice president and chief executive officer, was brushing his teeth before heading to work when he began having difficulty controlling his right hand.

At work, Clark immediately knew something was wrong when he attempted to sign his name on a document and couldn’t. Growing more concerned, he called a neurologist to his office, who did a quick examination and directed him to Jackson Memorial’s Emergency Department. It appeared that Clark was having a stroke.

“I was in disbelief,” he said. “I ate well and exercised regularly. I used to spend my weekends at the beach surfing and teaching my daughter how to play baseball and soccer. I hadn’t experienced any of the lifestyle factors that can increase your risk of having a stroke.”

In the Emergency Department, Clark was diagnosed with a cerebellum stroke that affected his right arm, right leg, balance, coordination, and ability to speak clearly.

He was transferred to Jackson Memorial’s neuro-intensive care unit (neuro-ICU), where Victor Del Brutto, MD, a UHealth – University of Miami Health System neurologist, performed CT scans and electrocardiograms to determine what might’ve caused the stroke.

“We believe his stroke may have been caused by a combination of exhaustion, dehydration, and lack of sleep,” Dr. Del Brutto said. “It isn’t very common to have a patient as fit and young as Hamilton in the neuro-ICU.”

Over the next few days, therapists from Christine E. Lynn Rehabilitation Center for The Miami Project to Cure Paralysis at UHealth/Jackson Memorial met with Clark to discuss his recovery plan.

“When I met Hamilton, I saw how determined he was to get better and how quickly he wanted to get back to full functionality,” said Kelsey Garcia, a Lynn Rehabilitation Center physical therapist.

For almost three months, Clark received three hours of physical therapy, occupational therapy, and speech therapy daily, all while performing his duties as Jackson Memorial’s CEO.

He took his physical therapy into his own hands and performed many of the exercises at home, too. Clark set up his own course, using cones and ladders to work on his agility and balance.

“When Hamilton told me he was running his own drills at home, I was shocked by how far he was pushing himself,” said Jill Collum, another Lynn Rehabilitation Center physical therapist who worked closely with Clark. “He exceeded all the expectations and goals we had set out for him.”

Clark was determined to get back to the lifestyle he used to live.

“I was told that most patients take six months to a year to recover and regain the motor skills that were affected by the stroke,” he said. “I made it my goal to recover as much as I could in three months.”

Clark completed his physical therapy in two months and regained most of the acute functions in his right arm and leg. Strengthening his speech became his next focus.

The speech-language pathology team at Lynn Rehabilitation Center incorporated Clark’s workday into his speech therapy sessions, having him give mock presentations while working on over articulating his words to strengthen the speaking muscles that were affected by his stroke.
“Being able to speak publicly is a skill that requires confidence, and I wanted to help him regain his confidence,” said Lauren Landera, one of Clark’s speech-language pathologists. “I’m proud to see how much he progressed over a span of a couple of months.”

It has been almost a year since his stroke, and Clark no longer requires any therapies. He is back to work full time and is looking forward to his surf trip in June.

“I was really humbled by my stroke,” Clark said. “I’m so grateful to the amazing teams at Jackson Memorial and Lynn Rehabilitation Center for getting me back on my feet. I owe a lot of my recovery to them and their support.”

11-year-old Boy Overcomes Brain Tumor Diagnosis

11-year-old Boy Overcomes Brain Tumor Diagnosis

In March 2021, 11-year-old Samir Rahman started complaining of sharp pains in the back of his head whenever his parents drove over speed bumps. His mother, Shanta Reza, initially dismissed her son’s concerns.

Over time, Samir’s pain went away. During last year’s Ramadan holiday, Reza and her family began fasting, a custom in their religion. One night, after fasting for more than 12 hours, Reza remembered Samir eating much more than he normally would. Feeling dizzy and hot, he laid down in bed, where he began to vomit profusely for the next three days.

“We weren’t sure why he was vomiting,” Reza said. “He threw up so much. Everything we tried to give him, he vomited – food, water, medicine. He couldn’t keep anything down.”

Reza and her husband became concerned, and took Samir to his primary care physician. Unfortunately, his doctor could not find the cause of the problem.

Over the next few days, Reza and her husband told Samir he did not have to fast anymore, thinking the long hours without eating or drinking might have been causing him intestinal discomfort.

Nonetheless, Samir kept vomiting.

“My husband suggested taking him to the hospital after reading that vomiting might be linked to problems in the brain,” Reza said.

Reza took Samir to the pediatric emergency department at Jackson North Medical Center. Once there, he underwent a CT scan, which revealed he had a four-centimeter tumor at the base of his brain.

“When the doctors told me the news, I felt like my world had crumbled,” Reza said. “No parent is prepared to hear that their child has a brain tumor.”

The team at Jackson North referred Samir to Heather McCrea, MD, PhD, a UHealth – University of Miami Health System pediatric neurosurgeon and the director of pediatric neurosurgery at Holtz Children’s Hospital.

At Holtz Children’s, Samir received IV medication that helped control the vomiting, and underwent an MRI to confirm the brain tumor diagnosis.

“The MRI did bode well for Samir and his parents,” Dr. McCrea said. “It suggested he had a low-grade tumor that once successfully removed wouldn’t require any chemotherapy or radiation.”

Dr. McCrea informed the parents that the tumor was operable, but there were potential risks.

“We were so happy to be at Holtz Children’s and with Dr. McCrea. We knew Samir was in great hands,” Reza said. “We were cautious, though. Dr. McCrea explained to us the dangers of surgery if anything went wrong. Samir could have a stroke, a brain bleed, or a seizure.”

Last May, Samir underwent the operation. The procedure lasted six hours, and Dr. McCrea was able to remove the entire tumor successfully. Pathology results confirmed he had a juvenile pilocytic astrocytoma, a benign childhood brain tumor, and thus no additional therapies were needed.

“Samir woke up post-surgery doing great. We let him eat later that day and started mobilizing him out of bed the day after,” Dr. McCrea said. “Though I was able to get the entire tumor out, we continued to monitor him to make sure it doesn’t grow back.”

Samir remained at Holtz Children’s for a few more days, being monitored by his medical team and undergoing physical therapy sessions to ensure the surgery hadn’t negatively affected his strength, balance, or coordination.

Today, almost a year later, Samir is fully recovered and still tumor-free, with no signs of it growing back.

“There were times my husband and I looked at Samir and didn’t know if that was the last time we would ever see him,” Reza said. “Dr. McCrea is our angel. I thank God, the doctors, and the nurses at Jackson North and Holtz Children’s for saving my son’s life.”